omg my radiation "team" is so frustrating. They call this morning 7am to tell me the machine is broken and there is no one to fix it. Then they call at 745 saying the machine is fixed where are you? My husband, being the uber patient man that he is, Lost his patience. That alone should tell you something. I called them back, That should tell you something too if you know how I am. I told them, forcefully, "our schedule is set in stone my husband will lose his job If this schedule is changed." and he will, they have been ver lenient on us up to this point but as I said yesterday "the goodwill is about to run out"
I am currently waiting for a call back.
Our situation has very little wiggle room. So I am going to tell them ( as nice as I can muster) "If the machine is broken we will come in anyway and wait until we have got to leave. If I miss a treatment bc the machine is not working properly so be it"
Mike has to be @ work @ WORK @ 9am!!! not a minute later. I am trying to take some of this on. Take the stress off of Mike. That is my job. To take care of him as he takes care of me.
Teresa is working with me on "exaggerating" so all of the above is gods honest true.
We are going to go tnt at 7 and hope there is someone there to work the equipment. That is the best we can do at this pt. If I miss it so be it.
That is frustrating. Like their lack of being able to do their job is your problem?
ReplyDeleteWhich reminds me, remember that their lack of being able to do their job is not your problem, it's theirs. They shouldn't be giving you a hard time about not showing up (you are, after all, quite motivated to be there) when they are the ones who told you to stay home. WTF?
Don't forget to complain to your docs about any little thing that might be bugging you. Nagging aches, rashes, mysterious stripes, extra limbs... They only know about what they are told. They can't read minds, and they aren't going through what you are. Information is one of your best weapons in this battle.
Why am I suddenly thinking about 'G.I. Joe'?
Because: "Knowing is half the battle"
ReplyDeleteBtw they never called back so I called them.